About us

DEBRA UK is a national medical research charity and patient support organisation, dedicated to supporting individuals and families affected by epidermolysis bullosa (EB), a rare, painful, and life-limiting genetic skin condition. EB causes the skin to blister and tear at the slightest touch, making everyday activities incredibly challenging and often excruciating.

We exist to provide community care and support services to improve the quality of life for people living with all types of inherited and acquired EB. We also fund pioneering research to find effective treatments for all types of inherited EB.

We work tirelessly to deliver practical help, emotional support, and hope for the future. Every decision we make is driven by our commitment to transform lives and create a world where EB is no longer a barrier to living fully.

About the role

We are looking for a passionate and committed individual to join our Board of Trustees as Treasurer. This is a unique opportunity to help shape the future of our charity and ensure we continue to deliver life-changing support for those who need us most.

We seek an exceptional candidate with substantial professional financial expertise, underpinned by a recognised first-tier accounting qualification.

You will bring proven experience in financial leadership and governance, combined with strong strategic insight to guide our long-term sustainability.

The role of treasurer is to provide strategic financial leadership to the charity, ensuring robust financial oversight, effective risk management, and compliance with regulatory requirements, supporting the Board in fulfilling its fiduciary duties.

In addition to the wider responsibilities of a trustee, the duties of the treasurer include:

• Ensure that the financial resources of the Charity meet its present and

future needs

• To ensure that the Board is aware of its financial duties and responsibilities and

the need to comply with all legislation

• Monitor financial performance against budgets and forecasts
• Ensure appropriate financial controls and procedures are in place
• Monitor cash flow, reserves, and investment performance

Time Commitment

Board Meetings: One annual in-person meeting (usually a two-day off-site event in November) and three virtual board meetings per year (each lasting approximately 2.5–3 hours).

Committee Meetings: Attendance at the Finance, Risk & Audit Committee, held virtually four times a year (each lasting around 3 hours).

Remuneration: Trustee positions are unremunerated, but reasonable expenses will be reimbursed.

Term: Three years (renewable for up to three consecutive terms)

Location: This is a UK-wide role, offering flexibility in where you are based. However, please note that attendance at our annual in-person Board meeting in Bracknell each November is required.

To apply:

Please send your CV and a covering statement (no more than 500 words) outlining your interest and relevant experience by 15 January 2026.

DEBRA is committed to being an inclusive charity, and we welcome and encourage applications from all sections of the community.

The successful candidate will need to undertake a DBS check and sign a non-disclosure agreement.