DEBRA was established in 1978 by Phyllis Hilton, whose daughter Debra had epidermolysis bullosa (EB), as the world’s first patient support organisation for people living with EB. Today DEBRA UK is a national charity supporting 3,500+ members, which includes people living with EB, relatives, partners, or carers of someone with EB, plus healthcare professionals and researchers who work with EB. DEBRA UK employs 350+ staff and 1,000+ volunteers who support us across a network of 100+ charity shops located throughout England and Scotland.

Our mission

is a world where no one suffers with epidermolysis bullosa

Our vision

is that we live in a world where no one suffers with epidermolysis bullosa (EB) and we provide life-long care, while seeking cures, for all those affected/impacted by living with EB.

Our values

are based around respect, passion, care, inclusivity, and we are committed to making a difference. These values are the foundation of our culture and are a significant element of being a Great place to Work.

Rewards & benefits

We offer a competitive salary, along with rewards & benefits which include

Auto Enrolment Pension with DEBRA contribution

Life Assurance Scheme

Employee Assistance Program

Personalised Recognition Awards

Opportunities for Apprenticeships and Internships

Testimonials

Our Patron – HRH The Duchess of Edinburgh

“The issues for those living with EB are compelling and emotive and this is what has drawn us all towards supporting such a worthwhile cause. I feel that my life has been enriched by the experiences I have had since becoming Patron of DEBRA, mainly through the patients I have met at a variety of functions. I never knew how much the human body could withstand in terms of suffering until I understood more about how people with EB live with their condition”

Our President – Simon Weston CBE

“I feel very relevant to DEBRA, having spent so much time having dressings changed, having healing skin pulled off because that’s what dressings do, having itch beyond all comprehension. I understand something of the pain and suffering that people with EB endure every day. I want to do what I can to fight EB and raise the profile of the condition.”

Area Manager, South Central

“It is such a supportive place to work, no matter what function you are in, everyone pitches in to help you be your best. It gives me a great sense of pride to know that I am helping, in my small way, to deliver something amazing to the sufferers of EB, and their families.”

Area Manager, Northern England

“With over 15 years’ experience at DEBRA, I enjoy working with the teams at DEBRA, alongside working with the management or the excellent volunteers, every day is challenging but extremely rewarding. It is a privilege to meet people with EB, reminding me why I am passionate, and take pride in my work.”

Shop Manager

“Since I started working for DEBRA, I have gained so much knowledge on EB and this is why I love coming to work every day to helps the EB community and find a cure for this horrible disease”

Assistant Shop Manager

“I enjoy and look forward to going to work because of my amazing team”